Extended Support Within a Person-Centered Practice After Surgery for Patients With Pituitary Tumors: Protocol for a Quasiexperimental Study

The aim of this study is to evaluate whether support within a person-centered care practice increases wellbeing for patients with pituitary tumors

Sofie Jakobsson; Daniel S Olsson; Eva Andersson; Tobias Hallén; David Krabbe; Ann-Charlotte Olofsson; Oskar Ragnarsson; Thomas Skoglund; Gudmundur Johannsson; Eva Jakobsson Ung

2020

Scholarcy highlights

  • BackgroundPituitary tumors occur at any age, but most often occur in persons at the peak of their professional career
  • Within a quasiexperimental design, patients diagnosed with a pituitary tumor planned for neurosurgery are consecutively included in a pretest-posttest study performed at a specialist endocrine clinic
  • This study entails an extensive intervention constructed in collaboration between clinicians, patients, and researchers that acknowledges accessibility, continuity, and self-management support within person-centeredness
  • The primary aim of this study is to evaluate whether support within a person-centered care practice increases psychological wellbeing for patients with pituitary tumors
  • The year after pituitary surgery constitutes an important time period, with medical evaluations of surgery and decisions on hormonal substitution, all resulting in a critical time for the patients
  • Evaluations of conducting person-centered care have shown that interventional studies demanded specific adaptation to the different clinical settings including time, workload, care culture, and documentation systems that would otherwise constrain the intervention unless continued education and follow-up were performed during the intervention 5758
  • The person-centered practice may become a useful model to further develop and explore person-centered care for patients with other rare, lifelong conditions

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