The lived experience of patients with pleural mesothelioma

This paper reports on a research study of five patients diagnosed with mesothelioma

Nicola Hughes

2014

Scholarcy highlights

  • This paper reports on a research study of five patients diagnosed with mesothelioma
  • The findings identify that patients have many unmet psychosocial and emotional needs and that there was a lack of information provided to patients about specialist supportive and palliative care services
  • Patients were involved in complex medico-legal matters in relation to asbestos exposure, and this was an additional burden for them and their spouse or carer
  • A feeling of social isolation was reported and a number of patients would welcome the opportunity to meet with other people in the same situation as themselves
  • There is a lack of attention to the emotional needs of this group of patients, which means that supportive care resources are not being accessed in a timely and flexible manner

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