Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015

Additional analyses were taken to review the data for duplication and the analysis indicated that very few duplicates likely occurred

Jaime Raymond

2019

Scholarcy highlights

  • Amyotrophic lateral sclerosis is a progressive, fatal neurodegenerative disorder defined by the loss of upper and lower motor neurons, typically resulting in death within 2–5 years of initial symptom onset
  • Better characterization of symptom onset may assist clinicians in diagnosing ALS sooner, which could lead to earlier therapeutic interventions
  • Having a better understanding of ALS onset may assist clinicians in making a quicker diagnosis, which could lead to earlier therapeutic interventions
  • Clinical characteristics of a large cohort of United States participants enrolled in the National ALS 415 one of the 17 surveys
  • An ALS diagnosis is primarily based on clinical assessment; it is not surprising that a diagnosis is often deferred to specialists with expertise in this rare condition after several months of testing
  • Better characterization of symptom onset can assist clinicians in making referrals to an ALS specialist resulting in earlier diagnosis, which could lead to earlier therapeutic interventions
  • Further research into the early symptoms of Amyotrophic lateral sclerosis is still needed in order to better understand disease onset

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